We care about thalassaemia
Established in 1993, the Children’s Thalassaemia Foundation is a charitable organization started by parents of thalassaemia patients, medical professionals and philanthropic members of the community. Thalassaemia is the commonest genetic disease in Hong Kong. Up to 1 in 8 of the local population are thalassaemia carriers and there are over 350 thalassaemia major patients. Our objectives are to support medical needs of thalassaemia patients, to prevent severe disease and to advance medical treatment through research. By promoting public awareness of thalassaemia screening before planning a family, we hope to prevent and fully eradicate severe disease. We fund medical research in order to find better cures.
Receiving no subvention from government, we are fully committed to raise funds throughout the year to undertake our work. This cannot be done without the tireless effort, enthusiasm and dedication of all members of the Foundation. To members of the community, we need your support to pursuit our goals.
The Children’s Thalassaemia Foundation has walked with patients and their families for over 30 years. We shall continue to work with pride towards better thalassaemia management, prevention, research and patient well-being for years to come.
About Children’s Thalassaemia Foundation
We are a non-profit organization dedicated to helping children with Thalassaemia disease. Our foundation was established to provide medical treatment, support, and education to those affected by this disease. We work closely with hospitals and medical professionals to ensure that children receive the best care possible.
Projects to be Funded
There are several projects that require funding. These projects include financing patients to carry out haemopoietic stem cell transplantation to cure the disease, to fund medical equipment and supplies, to support thalassaemia research to find better cures, and to help patients to improve their quality of life. Your support can make a difference.
All the Latest Updates
Stay up-to-date with our latest news and updates on our work to help the unfortunates with Thalassaemia. We share stories of hope, progress, and success in our mission to improve the lives of these children.
HOW YOU CAN HELP
There are many ways to get involved and help us in our mission. You can donate, volunteer, join the fund raising activities or spread awareness about Thalassaemia. Every little bit counts, and your support can make a big difference in the lives of these children.
Get to Know Us
Our team is made up of passionate individuals who are committed to making a difference in the lives of children with Thalassaemia. We are dedicated to our mission and work tirelessly to achieve our goals. Get to know us and join us in our efforts to help these children.
Why is he named the IRONMAN?
Patients with Thalassaemia major will only stay alive by receiving blood transfusions every month. He also needs to receive iron-removal medication by needle injection for 10 – 12 hours every night to improve his survival.
